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Cover image for Genetic data and the law : a critical perspective on privacy protection
Title:
Genetic data and the law : a critical perspective on privacy protection
Personal Author:
Series:
Cambridge bioethics and law
Publication Information:
Cambridge ; New York : Cambridge University Press, 2012
Physical Description:
xiii, 232 p. ; 24 cm.
ISBN:
9781107007116
Abstract:
"Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection"-- Provided by publisher.

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30000010301204 K3611.R43 T39 2012 Open Access Book Book
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