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Cover image for The handbook of ethical research with ethnocultural populations and communities
Title:
The handbook of ethical research with ethnocultural populations and communities
Publication Information:
Thousand Oaks, CA : SAGE Publications, 2006
ISBN:
9780761930433

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30000004581553 GN495 T74 2006 Open Access Book Book
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Summary

Summary

What steps can be taken to incorporate a cultural perspective to the evaluation of research risks and benefits? How can investigators develop and implement respectful informed consent procedures in diverse cultural and language communities? What are ethical pitfalls and successful approaches to engaging in community and participant consultation? The Handbook of Ethical Research With Ethnocultural Populations and Communities, edited by Joseph E. Trimble and Celia B. Fisher, addresses these and other key questions in the first major work to focus specifically on ethical issues involving work with ethnocultural populations. Filling gaps and questions left unanswered by general rules of scientific conduct such as those embodied in federal regulations and professional codes, this Handbook will help guide ethical decision making for social and behavioral science research with multicultural groups for years to come. Key Features:

Brings together for the first time a multidisciplinary blend of national leaders who specialize in the area of conducting research with ethnocultural populations Addresses existing issues at methodological, procedural, and conceptual levels for the responsible conduct of research in the field Incorporates as background a summary of leading research and scholarship on various topics framed within the authors′ personal successes, challenges, and failures in the dynamic process of creating a multicultural research ethic Includes real-world case examples to illustrate significant ethical principles in the research venture more concretely

The Handbook is designed for graduate and advanced undergraduate students in Psychology and will also be valuable for social and medical science researchers and institutional review boards. This book will also be of interest to ethicists and bioethicists, policy makers, and foundations that fund research involving multicultural populations.

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Table of Contents

Acknowledgements
PrefaceRichard Suinn
Introduction: Our Shared Journey: Lessons from the Past to Protect the FutureJoseph E. Trimble and Celia B. Fisher
Part I Foundations of Ethnocultural Research and Research Ethics
1 A Goodness-of-Fit Ethic for Multicultural ResearchCelia B. Fisher and Kathleen Ragsdale
2 Scientist-Community Collaborations: A Dynamic Tension Between Rights and ResponsibilitiesJohn Fantuzzo and Christine McWayne and Stephanie Childs
3 First, Do No Harm: Culturally Centered Measurement for Early InterventionNancy Busch-Rossnagel
Part II Research Ethics Challenges Involving Diverse Ethnocultural Groups
4 Addressing Health Disparities Through Relational Ethics: An Approach to Increasing African American Participation in Biomedical and Health ResearchScyatta A. Wallace
5 In Their Own Voices: American Indian Decisions to Participate in Health ResearchTim D. Noe and Spero M. Manson and Calvin Croy and Helen McGough and Jeffrey A. Henderson and Dedra S. Buchwald
6 "I Wonder, Why Would You Do It That Way?" Ethical Dilemmas in Doing Participatory Research With Alaska Native CommunitiesGerald V. Mohatt and Lisa Thomas
7 Ethical Conduct of Research With Asian and Pacific Islander American PopulationsJean Lau Chin and Jeffery Scott Mio and Gayle Y. Iwamasa
8 Ethical Community-Based Research With Hispanic or Latina(o) Populations: Balancing Research Rigor and Cultural ResponsivenessFelipe Gonzalez Castro and Rebeca Rios and Harry Montoya
9 Ethical Issues in Research With Immigrants and RefugeesDina Birman
Part III Socially Sensitive Research Involving Ethnocultural Families And Communities
10 Ethical Research With Ethnic Minorities in the Child Welfare SystemKatherine Ann Gilda Elliott and Anthony Urquiza
11 With All Due Respect: Ethical Issues in the Study of Vulnerable AdolescentsAna Marie Cauce and Richard H. Nobles
12 Ethical Research Dilemmas With Minority EldersSusan Krauss Whitbourne and Joshua R. Bringle and Barbara W. K. Yee and David Chiriboga and Keith Whitfield
13 Changing Models of Research Ethics in Prevention Research Within Ethnic CommunitiesFred Beauvais
14 Ethnographic Research on Drugs and HIV/AIDS in Ethnocultural CommunitiesMerrill Singer and Delia Easton
Part IV The Rights and Responsibilities of Individuals, Communities, and Institutions
15 Safeguarding Sacred Lives: The Ethical Use of Archival Data for the Study of Diverse LivesCopeland H. Young and Monica Brooker
16 Ethical Issues When White Researchers Study ALANA and Immigrant People and CommunitiesJanet E. Helms and Kevin T. Henze and Jackquelyn Mascher and Anmol Satiani
17 Coda: The Virtuous and Responsible Researcher in Another CultureJoseph E. Trimble and Gerald V. Mohatt
Name Index
Subject Index
About the Editors
About the Contributors
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